The condition is called neurofibromatosis, which is commonly called "NF." Fran Cone's son is a patient. And another son is one of the event's founders. "We're very, very, very grateful" that the event is expanding and attracting more and more
Its name is neurofibromatosis type 2 (NF2), and it only affects one in about 25000 people. At this point in time there is no cure. The Gaylord woman decided to speak publicly about her condition to share what she's learned about being her own health
money and awareness for the Children's Tumor Foundation – the world's largest nonprofit organization dedicated to ending Neurofibromatosis (NF), a genetic disorder that causes painful and debilitating tumors to grow on nerves throughout the body.
As the granddaughter of Gordon Composites/Polystrand CEO and CFO Doug Feist, 2-year-old Clara inspired company employees to donate $2506 to the Children's Tumor Foundation through her battle with neurofibromatosis. As is typical of many Christmas
The condition is called neurofibromatosis, which is commonly called "NF." Fran Cone's son is a patient. And another son is one of the event's founders. "We're very, very, very grateful" that the event is expanding and attracting more and more
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